General Chat

Good afternon everyone,
Have seen several posts of members who say they do look in but not post.I do the same a lot.All good year's resolutions flew out the window quickly. Mea Culpa.

Reading all postings, I feel a bit of a fraud for feeling like I do, must really try to see things in a different light.

W.N (Claire), you are in a terrible situation where your mum is concerend, I can really understand how it is.Appalling so-called 'care' from the medics and the social worker.
When I brought my mother over here in '96 (aunty-her sister too), it was a complete nightmare, one that still can haunt me.She was in the last stages of senile dementia.She died 9 months later, but they were horrific, to say the least.Aunty was heart-broken, she lasted another 9 years and died 18th feb. 2006, another horrific experience, something I wouldn't wish on my worst enemy.

Carole, I am very sorry to read about your two friends deaths. What a shock those friends must have had.

Dizzi/Gwen, Love the Native American saying, it touched some sensitive cords. Have you read a poem by Dylan Thomas called Do Not Go Gently Into That Dark Night? I was reading this again during my mother's last weeks, very apt.

Deanna, is your chair an electric one? My aunt had one made for her over here, it was great for a long while, but then broke down.Luckilly, the firm that made it, sent an electrician out the next day and repaired it.

Don't know how to explain it, but, whilst typing this, the box where you type your message in, keeps jumping back to the begining, so I can't see what I'm typing, have to check every few words.Does anyone else have this prob?

I give up, this is too annoying.Have a good day, keep warm

Eileen x

C try it out if you can find it.

Eileen, I think a lot of people have had the 'jumping box' syndrome, although I haven't so far.
I really like D Thomas and especially Do not go gently....
Good to see you posting again and hope all is OK with you.

Ann,
you have always been the main voice where common sense and advice is concerned, you always try to see things from several viewpoints, for this I thank you.

Am glad you know what I mean about Dylan Thomas's poetry...it still gets to me,after all these years, as does the death of my mother in '97, but a million times more at my aunty's death in 2006. Horrific. It also takes me back to wittnessing the death of my only friend in hospital when I was 10....this is all too often on my mind.

Today has been a mixture of weather, extremely cold, obviously snow/sleet on it's way, but, I can hear blue tits and coal tits chirping away outside....

OOOHHH NOO, it seemed alright.now the same prob. has raised it's ugly head, this is jumping even more fercely than before. Am stopping/ Eileen x

Hello dear friends, or those that remember me as I haven't been on for so long. I am going through a very bad time and I am one of those who clam up when down, I am even resenting the warden popping in for a chat, and I used to love it when she did. I have been reading some but not all of the thread because some days I don't put computer on and there seems to be so much to catch up on.
I am sick of the pain and Chris wants to up my morphine again, but I think 60mg I take already twice a day is a lot, and it makes me want to sleep all the time so I refuse and take my normal painkillers with it.
My hands are so bad I can't even wear my wedding ring (arthritis) and I have just taken up a new hobby that could be fiddly with small things, lol. I am also having trouble walking, having to drag my right leg then falling over as my balance has got worse, my Neurologist said this would happen, I will get worse and then they can do more tests and find out what's wrong, he still thinks it could be MS.

I don't want anyone thinking I am not bothered but I am finding it hard to cope at moment, I don't know if I told you that the scan that showed cancer was in my eye also showed up it was in my scull as well. I have been getting some awful headaches last few weeks and I don't know whether it is down to that or not.

There's more but I can't type any more, I just didn't want you all thinking I wasn't bothered about you all, I think of you every day.
The ones who I e-mail, you know who you are, you know why I haven't been in touch now.

Love and hugs to all
Caz xx

Hi Eileen, one of the most devastating things that can happen to a child is the death of a friend. I lose a very good friend when I was 13, if her illness happened today she would probably be alive.

Caz, hello my friend, sorry to hear the pain is bad, we do miss you when you are not on here but we also understand and know you will pop in when you can.
Do you have a walking aid in your apartment? If not, would one stop you falling?
I am so sorry to hear that your pain is so bad but understand why you don't want to increase the morphine. I do hope that you are due some pain free days soon. Bless you, you deserve it.
I am always thinking of you, you know that. xxxx

Hi YCaz, glad you popped in. I hadn't seen you on the board for a while so I guessed you were in pain.
Eileen (I think), I had the same problem with the screen jumping back to the start. Others have had the same problem.
One solution is to type your message into Word or even Notepad, then copy it and paste it into the GR reply panel.
Another solution is to use a different web browser. Since switching from Internet Explorer to Google Chrome I haven't had any problems. It may be a problem with GR and IE only.
Liz, I know you have some problems and don't expect to hear from you very often.
Ann (Gloucester), those were really nice thoughts for "our" YCaz and so on. I had a cousin, a year older than me, die of asthma at 14. I think I coped better than his father and especially his main carer, his grandmother. For ever after they blamed the hospital. Like your childhood friend, his asthma would have been far better treated today.
Deanna, thinking of you. I haven't seen David or Ben for a while so hope they are OK.
Hugs to all who need them. Thank you Hazel, I hope you don't mind me using your expression. Colin

MORNING ONE THING MIGHT HELP SOME
MY SUPPORT NURSE SAID DURING EXTREEM HEAT OR COLD THE MEDICATION WE TAKE MAY BE USED UP QUICKER THAN NORMAL


LOVE DIZZI

Think you're right Dizzi. Trouble is, I think it is dangerous to try to adjust the doses yourself.
Early start tomorrow so will away.

Good afternoon everyone,

I typed a long message earlier, it was fine up until about half way, then the box started behaving like a flea.Ploughed on though, was about to type my name, when the whole message vanished into cyber land....ws so disgusted I logged off.
Thanks for trying to help me Colin, but I have no idea how to use notepad or c& p ..thick as two planks, that's me.

Caz, I am very sorry to read about your terrible pain and ditto diagnosis, don't know what to say really, only that I keep you in my thoughts.
Ann & Colin, thank you both for letting me know that othersare having the same probs. with their screen/box jumping, thought it was just my pc, as I have been having a lot of probs. with it for months.

BTW....BLAST!!!! it is jumping again.!!!!

Ann and Colin again, it can be devastating for a child to lose a good friend.Mine could have been helped if it was nowadays.Watching her dying has always caused nightmares over the years.Then seeing her heart-broken parents come in...she was an only child.I also watched and held both my aunt and mother when they were dying...horrible experiences

It is snowing again, will def. get slippery when it freezes hard again tonight, but, I was able to get to the shops earlier.

Must try tell something funny after the sad stories above.

Yesterday on Radio 4, there was a discussion, didn't really follow it, but pricked my ears up at the surnames of two men, one was Smelly, the other Ramsbottom.(Really true)Now, if a woman married a Smelly and her surname was Ramsbotton, she would be Mrs. Smelly-Ramsbottom. Was giggling about this on and off last night.

I give up,this is far too frustrating. Can anyone tell me who I can mail to get an explanation for this irratating prob. please?

Eileen x

Eileen, try the contact us address at the bottom of the page.

Ann, the e-mail addy I used a few weeks ago, was probably the wrong one,i.e [email protected] so used the support@genesreunited today, am waiting to hear from them...not only does the box jump like a flea in a fit, (not doing so yet, it is waitng for me to get complacent, they strikes....lol), it wobbles a lot when you try to delete a wrong word or letter, and makes the old eyes wobble with it....

Eileen x

Hi all,

Eileen, it jumps about for me too sometimes, so annoying!

In Norwich we had a chap called Mr Smellie who was the city's health officer and his name was on all the dustcarts lol
I had to sit next to him at an official dinner once and was a bit wary of saying the wrong thing with a name like his, but he was a charming man and I didn't make any gaffes at all!


I had a good meeting with the new co ordinator at MIND and she has booked me to start with a new counsellor from March 1st providing I can use the car to get there as it's not easily accessible by bus. O.h. will just have to start cycling again!
They have a new receptionist and lots of new enthusiastic counsellors apparently so am hoping things go better this time and I can get somewhere at last!



Lizx

Thank you Ann, Colin and Eileen for your thoughts. Just popped on to tell you that I went yesterday for the results of the ct scan last week. It looks better, ct scan showed everything is stable and she is pleased at that, but better still my cancer count in blood has come down to 40, can't believe it, only had three cycles of chemo so far. Also she said the lumps on my skin, (they look like cysts but are cancer) are shrinking, I thought myself they were but it was better she comfirmed it.

Love and hugs to all.

Caz xx

Wonderful caz, that is great news, so pleased for you. That must have put your mind at rest anyway, even if it didn't help the pain.

That is good news, Caz. I haven't had cancer but my best friend, an aunt and my brother in law have all had various cancers (melanoma, breast and colon) and are all going well. As our Cancer Council slogan a few years ago said, Cancer is a word, not a sentence. A bit of a cliche, but that doesn't mean it is not true.

For Eileen and others with the screen jitters problem, both of these were suggested by otrhers and I have found that either works. You don't need to do both.
Copy and past works like this:
1. In a word processing type program, type your message.
2. Using the mouse, highlight the whole text.
3. Click the RIGHT mouse button which brings up a menu and click on copy.
4. In the GR thread, click reply as usual.
5. Click the right mouse button (which brings up a menu as before) and click Paste.
This takes a bit longer but can be very worthwhile.

For the Internet, I don't use Internet Explorer much any more. I use Google Chrome, and have also tried Mozilla Firefox. An easy way to get it for free is:
1. Using Google or another search engine, type "Google Chrome".
2. As usual, a whole list of matches comes up. Simply select the first one that says "Download Google Chrome" and follow the instructions. It may take a while with a dial-up connection, but otherwise I have had few problems.

To use it, just click on its icon rather than the Internet Explorer "e".
Hope this helps.
As a bonus, GC has a spell checker that IE does not..
Colin

Dear Y/caz, great news with the chemo, and only 3 cycles, great news also with the blood count. Horrid though when the meds make you want to sleep, so what is your new hobby, I hope it is loads of fun for you.

Just a quick pop on as have had a tummy bug, I think more like food poisoning, and has started to settle, teach me to eat salami.

Think of everyone

love and hugs to all

Gail

Hi Gail, I wondered where you had got to. Hope you are feeling better now. My new hobby is card making, after a lot of help from a dear friend on here I am ready to start my first one now for my granddaughter in a couple of weeks.
Ann the doctor was talking about radiotherapy as my next step, she said they use it to ease the pain, it will be in my hips which are so bad at times it makes me stop dead in my tracks and daren't move.
Colin I always think of my cancer as a nuisance rather than anything else, it is painful where it is in my bones but FM is much worse, then the arthritis in my hips where cancer is, sometimes I don't know where to put myself for the best, lol.
As regards sleeping a lot, the doctor told me it was normal, when Ill your body tells you it wants to sleep to heal itself. In my case she said I have the added FM, morphine and chemo, all of which makes me want to sleep.

Love and hugs to all
Caz xx

Hello,

I had a letter from Centrelink today thanking me for applying for a carer's payment and telling me that it has been granted. It's a relief to say the least. Just a weight off the shoulders. They actually sent four different notifications of various things - in four envelopes. Can't believe it didn't all come in one. Anyway, just wanted to share that, hope everyone is going OK.

Alison

Alison, that is great news and a worry off your mind, well done.

Caz, well let us hope that radiotherapy works on the pain for you, it would so improve your quality of life. I know what you mean about pain that stops you in your tracks. As you know I have a bad back problem, sometimes it also hurts in my side (apparently it is not my hips), when I turn in bed sometimes the pain is so bad I daren't move for a moment until it eases.

Gail, sorry you have been poorly, hope you soon feel better.

Colin, that is very well explained, If I could understand it I am sure Eileen will be able to.

Our boiler has broken down so no central heating. we have piled on clothes but it is still cold here.

Caz great news for you. Sorry about the constant pain you are in though. x

Alison pleased you got the financial help. x

Sorry not been on much I've had so much to cope with for the last few weeks. Yesterday was our dear friend Anitas funeral. First was a church service and then to the crematorium. Steve and I and our two kids (grown up's) went to both of these. Steve and I took kids home then we went to a wake at a pub very close to Anitas home. She has a daughter and three sons, and lots of grandchildren so it was nice to see how they had grown up and even see the grandchildrens babies. A very sad day, but she is no longer suffering.

Went to see aunt Lou, she is settling very well in the home. She was shown a bigger room, which is available but has said she will stay where she is now. She finds comfort from leaving the loo door ajar at night with the light over the mirror on. It reminds her of the front bedroom at her house, where the street light shone through the gap in the curtains. I have a week off work soon, so will be able to clear some of the fabrics she has held on to for years, just incase they come in for someone!!

Wins funeral ( the other friend who died) is on Tuesday, I'll have to work, but Steve will go.