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Top tip - using the Genes Reunited community

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ProfilePosted byOptionsPost Date

Unknown

Unknown Report 2 Feb 2004 02:21

Hi Eleanor & Tony in south London, very interesting to me. was it anti throbin 3 deficiency? They think I got it from my Dad, my sister is ok but I have passed it to 2 of my children, 3rd is ok. Had to have heparin and warfrin with my last babe, strangely enough she is the one without it! Can't seem to find out much about it. Hope all will be ok with you, Jo

Unknown

Unknown Report 2 Feb 2004 09:40

Hi Jo, I'm fairly sure it was Pro-thrombin Gene Mutation and apparently it only (mainly) affects the female of the species hence the note to get my daughters checked! In fact, all my siblings had the test done including my brother who is probably most at risk as he has to fly on average 4-6 times a week for his work. He didn't have it but he does always wear stockings when he's travelling about. It's fairly scarry really as my family and friends are supposed to remember what it is I've got, and let medical staff know in the result of an emergency so that they can take the necessary precautions with me before operating etc. I often think I should have it tatooed somewhere on my person in case my family and friends aren't available for comment at the crucial moment! My mum had the check done and doesn't have it so I suppose it may have come through my Dad's line but sadly he died 4 years before they found I had it so we can't check to be sure. Take care, Love Eleanorx

Bob

Bob Report 2 Feb 2004 12:10

Eleanor A tattoo might be too drastic (and dangerous) What about Medic Alert? They have a website on: http://www.medicalert.org.uk/ Worth a look. Bob

}((((*> Jeanette The Haddock <*)))){

}((((*> Jeanette The Haddock <*)))){ Report 2 Feb 2004 13:05

My Dad died of a pulmenory embolism 10 days after flying back from India. Coincidence? I suppose we'll never know. Jeanette

Unknown

Unknown Report 2 Feb 2004 13:35

Hi Bob, just had a look at that web site, think I will have to invest in some. Thanks for the tip