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Sufferers of Rheumatoid Arthritis

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ProfilePosted byOptionsPost Date

Lynda

Lynda Report 3 May 2004 17:12

I wondered if there were any of you out there that also suffered, My Sister in Law ws diagnosed last September, and has it really badly. She was recently taken off the drugs prescribed by the Hospital as they were making her so Sick & Giddy. She hs been told that once she feels better in herself they will revisit the treatment. I would be so interested to know if anyone has tried complimentary medicine and if any one thing in particular has benefited them. Herbs, Aromtherapy, diet etc It would be wonderful if there were alternative treatment that did not include drugs, but I guess that is too much to hope for. Any information I pass to my Sister in Law, I have told her to discuss it first with her GP. I would be so grateful for opinions, I just want to help her in some way. Lynda

Devon Dweller

Devon Dweller Report 3 May 2004 17:23

Hi Lynda, I suffer from Psoratic Arthritis and since I started taking high strength cod liver oil capsules, about 6 months ago, I have to say that I have improved 95%. The specialist at Sussex County was very impressed with the results. Sheila x

Lynda

Lynda Report 3 May 2004 17:26

Thanks a lot Sheila I'm glad it helped you, it really sounds a nasty thing to have. I shall copy everything down and send to her. Lynda x

Sandra

Sandra Report 3 May 2004 17:28

hi lynda, i have spondylosis of the neck and a crumbling spine last month diagnosed with arthritus in my knees, my anti in flamatorys are ibuprofen 500mg but they do a lower dose. and for my knees glucosomine sulphate 500mg they have just started to work after 6weeks and i believe their herbal tablets that you can also buy over the counter, i take painkillers as well, some pills i had made me sick where the dose was to high. I sympathise with her. sandra

Lynda

Lynda Report 3 May 2004 17:33

Sandra Thank you, will pass that on too. I really sympathise with you both & anyone who has it, it sounds so painful. She was so fit before the diagnosis. Lynda xx

Sandra

Sandra Report 3 May 2004 17:41

hi and she will probably go through stage of being depressed as well, i keep myself going with my hobbies and on a reasonable day i still do my gardening or something else though i know i'll be in agony for a few days, just had a really bad week, but carried on with my tree, but it is frustrating when things take twice as long if she ever feels like a moan she can email me. by the way i grew up in brighton what part are you both from or school you went to. sandra

Devon Dweller

Devon Dweller Report 3 May 2004 17:45

Hi Sandra, Im on the Hollingbury/Patcham borders. Ive been in Brighton for 16 years now, originally from High Wycombe.

Kathleen

Kathleen Report 3 May 2004 17:47

Hi Lynda, If your sil can travel to London,University Polyclinic part of the University of Westminster offer low cost treatment with various complementary therapists including Homoeopathy,Osteopathy,Nutritional therapy and lots more.Its only £18 or £12 for concessions. A lot of illnesses can be helped by diet,have a look on google for Leaky Gut Syndrome an article called Altered Immunity and Leaky Gut Syndrome by ZoltanP.Rona M.D its an eye opener If you want more details of the Polyclinic let me know. Good luck Kathleen

Lynda

Lynda Report 3 May 2004 17:51

Sandra She is going through that now I'm afraid. She cannot do anything at present, her joints are so swollen that she can't even open a tin of beans, or turn on a tap. She spent the last 10 days in bed with this sickness, and has only been up for a few days. Thankfully she has great neighbours and a super daughter (she lives in wales) the rest of us are trying to do what we can, me doing things like this, others looking into benefits etc, she had to give up a job she loved, and is now on SSP only. She doesn't have a PC, so no access to email I'm afraid. But I am praying that there is something, either natural or convential that will allow her to live even a near normal life. I will pass on your message though, I am sure she will take comfort from it. Lynda Sorry Sandra, forgot!! I live in near Dyke Road Park in Brighton. I was born in Patcham and went to School at Lourdes Convent, near Preston Park.

Sandra

Sandra Report 3 May 2004 17:52

hi 2 of my old school friends live in hollingbury near the carden hill school and westdene near the stadium, i grew up near the racehill and lower bevendean my parents are still there, and loads of family.all over, in maidstone now the countryside is lovely but when i come down to brightoni have to go along the seafront,and gardner st the little shops and the lanes. sandra

Devon Dweller

Devon Dweller Report 3 May 2004 17:55

My son is at Carden School, my nephew at Varndean. and I used to live off the Dyke Road near the 7 dials!

Sandra

Sandra Report 3 May 2004 17:57

hi you can contact local council for a blue badge for parking, and disabilty and mobility phone no i s 0845 7123456 for a form they give you extra for help you need, also wrvs are helpful with shopping and gardening and a voluntary care service at most hospitals for appointments and hospital visits, some also do shopping trips with you. sandra

Lynda

Lynda Report 3 May 2004 17:59

Thanks for this Kathleen I am sure if she was keen, my Nephew would drive her there. He lives in Cornwall but would go anywhere for her. I have been looking at dietry requirements sites, but also wanted to find out first hand from people who have tried them. Are there details of the Polyclinic on a website? Lynda

Devon Dweller

Devon Dweller Report 3 May 2004 18:00

Once youre on the official disability list (my sister is disabled) you can also get a cleaner and someone to do the shopping once a week.

Lynda

Lynda Report 3 May 2004 18:01

Thanks again Sandra Your all brilliant!! Sheila The Seven Dials are my local shops!!!!!

Sandra

Sandra Report 3 May 2004 18:02

for lynda went to queens park then whithawk which became stanley deason and finished off at falmer, 1977 a long time ago, used to go to preston park for the carnival, and lived off elm grove with hubby no 1 left brighton in 1979 but go to see family sandra

Lynda

Lynda Report 3 May 2004 18:05

Sheila This what I told her today. Either her GP or someone will need to contact Social Services I think. My Neice is so good and has been popping over and doing some cleaning, but as she works full time & has a family of her own, Kath (my sister in law) feels guilty about it.

Lynda

Lynda Report 3 May 2004 18:06

Sandra Know all the places you mention, had a friend who lived in Elm Grove!!

Kathleen

Kathleen Report 3 May 2004 18:07

Lynda Polyclinic tel no 020 7911 5041 email [email protected] web add www(.)wmin(.)uk/sih/polyclinic When I last looked at the site couldnt find much info,but if you ring or email them ask them to send you details of all treaments available.Dont know if any other Unis or teaching hospitals offer this service somewhere nearer to where she lives. If I can find out will let you know Kathleen

Lynda

Lynda Report 3 May 2004 18:10

Your an Angel Kathleen!! She lives in Cauldicott, Gwent. The Hospital she goes to now is in Bristol, so even there would be a possibilty for her.