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my son has just been diagnosed with NARCOLEPSY!!
Profile | Posted by | Options | Post Date |
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NicolaDunbyNocula | Report | 18 Dec 2004 00:03 |
I'm sorry to hear that Susie, I hope that with medication things will improve for your son. Thinking of you Nicola xx |
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Big Shaz | Report | 17 Dec 2004 23:42 |
Susie I am sorry to hear this and send Best Wishes and ((hugs)) to you and your son and family! Shaz x |
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Len of the Chilterns | Report | 17 Dec 2004 23:32 |
I am so sorry to hear your news, Susie. Len |
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Unknown | Report | 17 Dec 2004 20:51 |
hi susie, in the uk,all thats on offer,is medication,and therapy. in the states,they are making great headway,but are having to fight for research funds...they have isolated a gene,which could well be the cause,so keep your fingers crossed. best wishes to your son.....bryan. |
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Lisa | Report | 17 Dec 2004 20:48 |
one of my husbands friends had that and could not work on certain projects due to this.i know it's upsetting but once you know what it is it can be controlled.love and hugsxxxx(: |
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lou from leicestershire | Report | 17 Dec 2004 20:41 |
susie im sure he will b fine as the treament will help him thinking of u all lou xxx |
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Unknown | Report | 17 Dec 2004 18:30 |
Oh Susie, sorry to hear your news. We never stop being mums however old our children are, do we? I hope that he gets the appropriate treatment, and that you are reassured by looking at some of the websites. Sending you loads of love and hugs hun, Mandy xx |
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Unknown | Report | 17 Dec 2004 18:15 |
Hi Susie - l am so sorry hun to hear about your son. l had not heard of it before either and have looked on the websites, there are alot of sites out there with info and like they say - it is treatable,but that does'nt lesson your worries at the moment. Take care - you know where l am. Love & Hugs to you all xxxx Jude sarf wales and Vic x oh and Mad dog Madoc x |
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Lindy | Report | 17 Dec 2004 14:26 |
Susie, I am so sorry to hear your bad news, it must have come as a terrible shock. Look on the bright side, it is treatable and your son can continue with a normal life. (((Hugs)))) Lindyxx |
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Jack (Sahara) | Report | 17 Dec 2004 14:20 |
Love to you and your family Susie. I have to say i've never heard of Narcolepsy. Hope your son's ok. Lots of hugs Jack xx |
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AnninGlos | Report | 17 Dec 2004 14:18 |
sory to hear that Susie, it is very worrying for you, and for him of course. Hope he can get it sorted out with medication. Ann glos |
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Researching: |
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Devon Dweller | Report | 17 Dec 2004 14:03 |
Hi Susie I'm very sorry to hear your news. I also watched that programme and from what I can remember if the condition is mild then they are very sucsessful in treatment. I hope everything turns out well for him Sheila x |
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susie manterfield(high wycombe) | Report | 17 Dec 2004 14:02 |
thankyou all sooo much for your support theres no place like genes for friends is there. love susie |
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Bec | Report | 17 Dec 2004 13:22 |
Sorry to hear your bad news. Let's hope there's a treatment for him. Becx |
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susie manterfield(high wycombe) | Report | 17 Dec 2004 13:19 |
we visited my eldest son last night and asked the about his recent bloodtest.i was shocked when he told the results! i feel like crying.he was always tired and nodding off,so decided to get it checked out.he now has to see the neurologist. he has 3 small children and another due in january.does anyone else suffer with this?susie |