General Chat

Hazel, so sorry to see that you are in pain, I hope you get relief from it soon.

Deanna, glad that you are bouncing back up, we wait here patiently for you to do so. Glad also that Tony is better, and what a good son to buy his Dad a TV for his birthday.

Ann x

As Ive mentioned before on here my younger brother has bowel cancer and dodgey kidneys and high blood pressure and a thyroid problem and arthritis.

How weird that I'm the one who feels like crying

No it isn't David, you feel sad for your brother, he is being strong for his family as well as for himself, sometimes those with the worst illnesses seem to have more strength than those of us who are well. I am sorry to hear about your brother and hope he can stay comfortable and pain free.

Ann
Glos

Oh David, Ann is so right, somehow the people with the biggest probs, seem to hold the rest of us up.
I'm having a struggle at present, as you know - chaos is my middle name so it's nothing new, I've been having bouts of crying too, I feel so sad when I look at Sarah - having read the consultation report just received, where they specifically identify her 'profound developmental delay' on top of autism. I am SO sure she is "in there" - that she understands what we say, that she has a wicked sense of humour, that she is MUCH brighter than the reports show, but to see it in black and white really set me off today.Perhaps this is a delayed response, as soon as she was diagnosed 9 years ago, I became an advocate, it distracted me from thinking too deeply about her potential, and the future. I am taking an extra citalopram at present for a few days, hopefully to set me back up.
Crazy really, when I've had such wonderfully positive experiences in the past 2 weeks, to be so down. Today my son called to say he has arranged a singer/band for our fundraiser event in December, a friend he went to high school with is now doing music professionally and has offered to provide the evening's entertainment free of charge. if you Google Mike Lynch music you'll find him He's a country singer but does other music also. He and Dave have been friends for about 20 years.
Thanks for listening, going to lie down and hopefully sleep.
Mary

Hi David i felt the same when my best friend told me she had cancer, i just cried for days,

Then year later my sister told me she had it, Then 9 months later my mum was told she had it.

My best friend and sister have had all clear for it fingers crossed it stays like it.

But sadly mum passed away a year ago.

So do cry for him as it helps you to help him cope with it.

sending you and your brother {{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}

Hazelx

Hazel, sorry to hear that you are in such pain.
What is the doctor giving you for it?
When I was on high dose of steroids, I was always in pain. I could break a rib just by LAUGHING!!
The doctor used to give me a really strong pain killer, but I cannot remember the name.
I only used them when I was in REAL PAIN.
I hope they find out why you are having this pain love, as we all know from experience that pain is not fun. X

Yes Ann, Tony is better... still tired but we have learned to accept that when it happens. The awful thing is that he was such an amazingly fit healthy young man.
Allan and I would be able to accept it easier if he had not been so athletic.
Still... he is still here with us, so we handle anything which comes now!X

David, there is nothing abnormal about the way you are feeling.
You are upset about your beloved brother. He will be handling it far easier than you are, I was the same and I cannot even give you a reason for it.
I remember the morning of my operation when Tony and Allan left me in the hospital.
I waved to them as they walked along the corridor, and Tony was carrying my Zimmer frame and he kept turning back to look at me. He looked ... terrified. I was smiling and felt okay.
My husband,different character, shrinks within himself when he is worried and walked off with a little wave. I knew so well that he was in a terrible state, and could do nothing to help either of them.

Your brother will be the same probably David.
SO.... if you want to cry.... cry... You look after your emotions exactly as YOU need to. He will look after his the way he needs to.
God bless David. Chin up love.

Love to all my friends on here. I will see you all again soon.
Deanna XXXXX

Mary, hang on in there, we are all sending you are most positive thoughts, after a lie down and a little sleep I hope you will be back to your positive self.

Love
Ann xx

Thank you Ann, Mary, Hazel and others for your kind thoughts.

Brother has had 2 bowel cancer operations this year. He hopes for another operation to reverse the previous work and do away with the colostomy bag

In 1944 my grand mother died of bowel cancer. Medicine has progressed much since then.

My other brothers son is ill with gall stones. He lives down south.
He only comes north for funerals. The last one being my aunt May and before that our Mother and before that our Father.

The next time will be for my wife, myself or my brother.

Tempus Fugit

Just a thought, I wonder how Doctors cope ? they must be strong ?

Oh bugger it,something has hit me!

There is a job I have been doing for years,part time,dead jammy.Had a little problem about the time Uncle Bill died.

Night before last I couldn't do it.Drove almost to the venue and couldn't go in.Luckily supervisor knows my position but I am hiding behind the sofa today!
I suppose I haven't slept properly since the old man came home but this is a bit of a bummer!
Hope everybody else is coping and feeling as well as they can.

Sharron, maybe it will all seem better tomorrow. hang on in there, I am sure you are tired looking after your Dad, mentally and physically but I do so admire how you cope. Is there no way you could have a break, nobody else to look after him for a day or two so you could get away. Has he coped OK since his brother died?

Take care

Ann x

Really,I am getting more help than I could possibly have hoped for,we have a couple of wonderful friends and I am not doing so badly really but this has just hit me.

I am always listening in the night and spend my days organizing and keeping all the balls in the air.
Have thought about a couple of nights away but it would have to be organized and I would not be able to listen out in the night.

A bit of extra sleep will probably do the trick.

Sending you all positive thoughts to those who are havig a rough time at the moment xxx
I have'nt been on for a little while so thought i'd just pop in and say hello
All is good here, have just returned from a week away with little girl, hubby and wee man stayed at home. Had a fantastic time, we went to Corsica which is the most beautiful island with some breathtaking scenery. Very little to do there but that suited us just fine we just played on the beach and V found 2 little friends from Switzerland it was so sweet watching them playing quite happily but not being able to comminicate to each other verbally.
We visited a german resort most evenings as the food was fab and very reasonably priced. A new group of tourists arrived friday and ammogst the newcomers was a group of about 25 people with learning difficulties. It really warmed my heart seeing them being included in society , having relationships with each other and just generally having a great time. How it should be.
So much washing and catching up to do now
Sending love to you all
Claire xxxxx

I took my brother out for a few hours s todaday up the coast to one or two coastal resorts. He enjoyoyed it.
I enjoyed being of some small help.

Apologies for at least 2 spelling errors

Hi to all

I havnt posted for ages but life up till recently has been going pretty ok, but now i am feeling very scared and dont know what to do with all the thoughts going round in my head so once again here i am.

my daughter is nearly 14 and she weights just over 9stone she was a eight and a half pound baby and has always been big but i wouldnt say she was fat and she certainly is not obese but on the other hand it would her her to loose a few pounds but she is still so young she will probably grow up and slim down naturally. But she has becomes obsessed about her weight and is convinced she is huge and needs to lose weight.

She is starting to develop all sort of food phobias she wont eat fruit the only veg she will eat is sweetcorn and carrots ( as long as the are cut in to batons and smothered in gravy) she says she likes strawberries but wont eat them cuz of the seeds?! she will only drink smoothies is they have no bits and come in a carton so she cant see what it looks like. the list goes on at times it is a real struggle to know what to feed her.

When she dose eat she tends to eat all the wrong things chips crisps burgers chocolate etc.

She very rarely eats breakfast but since i was at home this morning i made her have a smoothie and she had a tiny amount of readybrek then declared she was full and couldnt eat any more.

One of the teaching assistants at school suggest that she should see a counsellor so obviously her eating habits are being noticed outside as well.

I just dont know what to do i am scared that left unchecked this has the potential to develop in to a serious eating disorder but on the other had i dont want to make the situation worse and my daughter is a bit of a hypochondriac.

Do,please,get her to talk to somebody.They know what they are doing and how to deal with these things before they blow up into something totally unmanageable.

Most of us would be in a lot better state in the upstairs departments had we had a counsellor to unload on when we were young.

It must be wearing you both out at the moment.

Hello Whitenancy. I think you should get your daughter to a counsellor, phobias need to be dealt with and she seems to be developing a serious food phobia which you need expert advice about. It may well be teenage fads, seems strange that she will eat crisps etc which suggests it is not linked to her weight. has she been ill recently after maybe eating some of the things she is avoiding?

Hi All

I have made an appointment to see our GP for my daughter at a time when we can call attend.

As to Ann she has not been ill. despite being offered a wide range of food as a child gradually as she has got older she has decided she dosnt like fruit and veg etc and will only eat the plainest of foods.

She announced a few weeks ago she was on a diet and started skipping meals after eating virtually nothing all day on one occasion she took herself to the chippy and bought a portion of chips which she ate along with a slice of plastic cheese and a pot of chocolate custard!

Having struggled with my weight and also being diabetic i know enough about healthy eating but what ever i tell about eating a balance diet and getting plenty of exercise seems to fall on deaf ears. I have always pulled in the extended family like her god mum and her nan who she is close to but they both live a long way away but do what they can over the phone.

She is doing PE theory at school and they are studying about the Dove campaign for real beauty but again she dosnt seem to be able to make the connection to herself.

At least through all this we both have the love and support of my OH i cant begin to imagine how her real father would cope with this.

David PULEEEESE..... If you start to apologies for errors in your typing and spelling, I am going to get a complex.
I have to use the spell check ALL THE TIME NOW.
When I recovered from the stroke... which I had exactly a year ago... my son said... My god mum, who will do my proof reading now???
Then I remembered the spell check, a wonderful aid.
Stop worrying about the little things David, enjoy all the good things we have.;-0)
Deanna XX