General Chat

A good site for people with any illness www(.)mywavelength(.)com Kathleen

Dear Karen Thanks so much for replying, I really do appreciate it. I'm really sorry you are going through such a bad time, I hope that you are on the up very soon. I know that Kath has these awful times dropping things as well. I'm hoping they can get her medication sorted out, she was really frightened when she fell so ill on the last combination and very wary about going on to others. She gets tearful and angry too, although she tries to hide it when I phone. Other times she tries to be very positive. She is going to find out about Mobility and we are looking into all the financial and Social Services aspect. In fact the whole family is helping right now. Thank you for your offer of contact, She doesn't have a computer, but maybe it would be nice to have some contact, I will see what she thinks, even if it's via yours truly. Kath is very much into hugs!!! I will pass yours on and I know she would send one back to you, as I do. God bless you Lynda xx

Thanks Sheila The family up there are on the case, she's also got an Occuptional Therapist coming this week. I think I downloaded and printed off the whole of the DSS Benefits website last night!!

Lynda She need to apply soon rather than later because the paperwork takes ages then theres an assessment. However, once it's approved it opens the door to other types of help she'd be entitled to. She'll have to ask though because they don't give you the information. Sheila

Your an Angel Kathleen!! She lives in Cauldicott, Gwent. The Hospital she goes to now is in Bristol, so even there would be a possibilty for her.

Lynda Polyclinic tel no 020 7911 5041 email [email protected] web add www(.)wmin(.)uk/sih/polyclinic When I last looked at the site couldnt find much info,but if you ring or email them ask them to send you details of all treaments available.Dont know if any other Unis or teaching hospitals offer this service somewhere nearer to where she lives. If I can find out will let you know Kathleen

Sandra Know all the places you mention, had a friend who lived in Elm Grove!!

Sheila This what I told her today. Either her GP or someone will need to contact Social Services I think. My Neice is so good and has been popping over and doing some cleaning, but as she works full time & has a family of her own, Kath (my sister in law) feels guilty about it.

for lynda went to queens park then whithawk which became stanley deason and finished off at falmer, 1977 a long time ago, used to go to preston park for the carnival, and lived off elm grove with hubby no 1 left brighton in 1979 but go to see family sandra

Thanks again Sandra Your all brilliant!! Sheila The Seven Dials are my local shops!!!!!

Once youre on the official disability list (my sister is disabled) you can also get a cleaner and someone to do the shopping once a week.

Thanks for this Kathleen I am sure if she was keen, my Nephew would drive her there. He lives in Cornwall but would go anywhere for her. I have been looking at dietry requirements sites, but also wanted to find out first hand from people who have tried them. Are there details of the Polyclinic on a website? Lynda

hi you can contact local council for a blue badge for parking, and disabilty and mobility phone no i s 0845 7123456 for a form they give you extra for help you need, also wrvs are helpful with shopping and gardening and a voluntary care service at most hospitals for appointments and hospital visits, some also do shopping trips with you. sandra

My son is at Carden School, my nephew at Varndean. and I used to live off the Dyke Road near the 7 dials!

hi 2 of my old school friends live in hollingbury near the carden hill school and westdene near the stadium, i grew up near the racehill and lower bevendean my parents are still there, and loads of family.all over, in maidstone now the countryside is lovely but when i come down to brightoni have to go along the seafront,and gardner st the little shops and the lanes. sandra

Sandra She is going through that now I'm afraid. She cannot do anything at present, her joints are so swollen that she can't even open a tin of beans, or turn on a tap. She spent the last 10 days in bed with this sickness, and has only been up for a few days. Thankfully she has great neighbours and a super daughter (she lives in wales) the rest of us are trying to do what we can, me doing things like this, others looking into benefits etc, she had to give up a job she loved, and is now on SSP only. She doesn't have a PC, so no access to email I'm afraid. But I am praying that there is something, either natural or convential that will allow her to live even a near normal life. I will pass on your message though, I am sure she will take comfort from it. Lynda Sorry Sandra, forgot!! I live in near Dyke Road Park in Brighton. I was born in Patcham and went to School at Lourdes Convent, near Preston Park.

Hi Lynda, If your sil can travel to London,University Polyclinic part of the University of Westminster offer low cost treatment with various complementary therapists including Homoeopathy,Osteopathy,Nutritional therapy and lots more.Its only £18 or £12 for concessions. A lot of illnesses can be helped by diet,have a look on google for Leaky Gut Syndrome an article called Altered Immunity and Leaky Gut Syndrome by ZoltanP.Rona M.D its an eye opener If you want more details of the Polyclinic let me know. Good luck Kathleen

Hi Sandra, Im on the Hollingbury/Patcham borders. Ive been in Brighton for 16 years now, originally from High Wycombe.

hi and she will probably go through stage of being depressed as well, i keep myself going with my hobbies and on a reasonable day i still do my gardening or something else though i know i'll be in agony for a few days, just had a really bad week, but carried on with my tree, but it is frustrating when things take twice as long if she ever feels like a moan she can email me. by the way i grew up in brighton what part are you both from or school you went to. sandra

Sandra Thank you, will pass that on too. I really sympathise with you both & anyone who has it, it sounds so painful. She was so fit before the diagnosis. Lynda xx