General Chat

im annoyed at one of the consultants, he told dad it was a curative operation , he should have said that it may spread or were we dumb to think it just goes like that as ive said he is the first one in my family to have add cancer we have no dealings with it till now , off to take them a big basket of fruit and some flowers

hope everyone is ok

i have a scan on my lump in breast and arm 4th august x

Just got back from the hospital, and the blood tests aren't wonderful... back to where they were 8 to10 months ago, overall... one is worse than it was this time last year. Explains my tiredness,lolol

I have to have another bone and bonemarrow biopsy next week, yuk... the only bit of me that is better than a 20 year old athlete, is my bone density, so it is always a bit of a pain in the bum, lolol Meanwhile, I am on antibiotics in case it is just an infection that has messed up my system.... which is the most likely thing, as the decline in bloods is not as rapid and as severe as a full on AML relapse would show.

We discussed the treatment ahead in a worst case scenario... I have a stem cell donor all lined up ready, anyway... so I am now fully armed and ready to bat any sneaky little cancer cells into oblivion should they dare to invade my space again......

Take care everyone... good luck with your scan, Puss, and also your Sdad with his treatment

Love

Daff xxxxx

Aaaw Daff what an absolute *ugger!

If you need a scream you know where I am.

Love Sue xx

Thanks Sue, mwah!!... actually, my consultant has just telephoned me... his wife will kill him, he is supposed to be going home early as he has a two week family holiday planned,lol

He has been and had a good look at my samples for himself... he phoned to let me know he could find no sign of any blasts whatsover, which is excellent, as some could be expected to seep out.... but warned me that this is not a full guarantee... but it increases the probability that there are no blasts in my marrow. The biopsies will hopefully confirm that.... it is the only way it can be confirmed. It is still a niggle in the back of your mind though.

So, I am feeling a lot better than when I left the house this morning...


Take care

Love

Daff xxxx

That's better news then, hopefully next week will bring the best results and you are just harbouring a simple infection *fingers crossed*

Love Sue xx

fingers crossed for you too daff, my doctor confirmed i do have MS today and i will be given support where necassery and told me not to listen to what others say !! yes miss, i had to have doc out other nite could not move an inch, any way...
can anyone explain what cancer in the blood is i;e does it now have a name too, the sights ive looked on are good but i dont always understand so would prefer ideas, basically he has had a tumor then another in same place now its in groin lung and blood.
date for mine is aug 4th.

Thanks Puss... I'll be fine, I can feel it in me waters.

Cancers of the blood, as far as I am aware, would be one of the Leukaemias...

I am almost certain that there are no other types... there are four main ones, with *sub divisions* in each

Acute Myeloid Leukaemia (mine) very aggressive, and comes on quickly

Chronic Myeloid Leukaemia, which is slower, often goes undiagnosed for many years,

Acute Lymphatic Leukaemia again very aggressive and comes on quickly

Chronic Lymphatic Leukaemia, which is slower, and can go undiagnosed for a long time too... I don't know much about the Lymphatics, just the basics... I have studied the Myeloids a lot more because it relates to me.

Other than that, I don't know....

Sorry I can't give you any more information than that.

Love

Daff xxxx

thanks daff, i wonder because they said the type of cancer he started with is rare and aggressive means any 2ndrys and future tumours are aggressive , he is in shock and keeps talking so i keep listning but my poor mum is falling to bits, i took them a massive basket of fruit the other day and told him to eat drink and everything with broccoli and tomatoe sauce but not together , i last checked the prognosis it was at 58%, im wondering if its stage 3 now, i coulkdnt go to last appointment was stuck in bed, which im off to now xxxxx goodnight all xx

Puss.... was it the *blood vessels* rather than the *blood* as that is totally different.... And have they given you a series of numbers regarding the stage his cancer is at?

I can look it all up for you, if you want pm me.... but it won't be until tomorrow, as I am totally whacked tonight.

Take care

Love

Daff xxxx

It sounds as though the surrounding blood vessels have been invaded by the tumour... or may have been.... I can tell you categorically that if he has a Leukaemia the treatment is totally different, and he would know about it... it isn't treated by a cancer doc for a start off... he'd have had a referral to the Haemotologist...

It still sounds as though he has a rough ride ahead, bless him...58% sounds ok.... to me, lol... I still haven't reached that! Every day brings me closer....

Right.... off to bed now myself... Granddaughter has gone off to sleep at last.... she was being a kangaroo earlier, and bouncing all over the upstairs.....

Love

Daff xxxxx

I am sorry that you have had the MS diagnosis confirmed, which form do you have? As I said in my email to you at the beginning of the year without knowing that it's hard to offer help.

I know there is the Hamer Centre (I think that's it) I am sure they'll offer you all the support you need.

Sue

Does anyone know if it is true that Puss has left the boards and GR? Someone tried to pm her today and was given the old web page has expired routine. I shall be sorry if she has, it sounded as if she could do with our support.

Jean, yes, she has left GR and deleted her account. I am not sure, but I have a feeling she was targeted by some of the unpleasantness a couple of nights ago, and has had enough.

Love

Daff xxxx

puss would like me to let yu know anyone wanting to chat can mail her for one, her stepdad goes for chemo next week, and her scan is on wednesday

fingers crossed for them both, and love to all who have battled or are still battling cancer xxxxx

Finally got my access back, am so sad to read that puss has left GR. A real shame and I will miss chatting to her on here.

Daff, have got everything crossed for you. Hope everything is ok.

I had my blood test last week. Am a bit worried as it is possibly being sent to a different lab as the lab it usually goes to is on strike. Have got my appt at the hospital next thursday and depending on the results of the blood test may have to have bone marrow test.

Hope everyone is ok. Am pleased to be back online : )


Annie
xxxxxx

I hope Puss's scan goes ok, and her Sdad's treatment.

Annie, chin up, hun.... I'll hold your hand if you hold mine!

Mine is the bone marrow biopsy result... but as I am feeling better every day, and my bloods on Friday were better (except for those darned platelets, lol}... so I am bruising and bleeding a fair bit, gums and nose, and the petechiae are out in force... but I am otherwise doing ok. So I am fairly sure that it was infection not relapse. Well, now I am chilled... I expect I shall have butterflies on Monday. I have an appointment fixed up already with the transplant specialist... just in case, but I am quite chilled now. lol

I need to remind myself... can you have a transplant, or do you have to wait for a specific stage? Our bloods are always tested within about 1 1/2 hours, max... we are very lucky, but it is why we spend so much time waiting there, lol

Let me know what your bloods are.... and take care ((((hugs)))))

Love

Daff xxxxx

thinking of you our puss xxx
fingers well crossed

(((hugs ))) for Daff to i will be thinking of you to xx

Mwah, Joy.... thinking of you always, too. xxxxx

Love

Daff xxxx

Hi Daff,

My doctor has said that I can have a bone marrow transplant but he wants to go with the medication first, eg if current meds no longer worker changing to another one. As you would know it is an emotional rollercoaster for me at the moment, mostly I am fine but just the stupidest things will upset me like ads on the telly. I used to laugh at my mother for crying at tv programs, now I am doing that same thing LOL.

I am a bit worried about my blood test though. The biopsy I had taken at the colposcopy clinic bled for nearly 2wks, only spotting every day but still bleeding then that finished and I went straight onto monthlies passing a cyst. I feel like I am going to run out of blood soon hahaha : )

Have been having a lot of headaches, some have been severe but mostly they are bearable.

We'll both hold each others hand and we will get through this. If I was near you I would come and visit and give you a hug.

Annie
xxxxxxx